Tuesday, March 20, 2012

Moving Forward

March 20, 2012: The way forward… is looking thick. Mom is due to come home tomorrow. My back is on the fritz, due mainly, I think, to terror of being left alone to deal with Mom. I will be controlling her meds, which she says she agrees to, but which has been an enormous power issue in the past. I will be emptying the commode, helping her every time she gets up or down (which she is now just about able to do, with a walker), dealing with her episodes of breakthrough pain, cooking and running the household, and listening to her shifting stories weave in and out of reality all day long. This last is the most horrifying prospect.

As a mature, rational, capable adult, I have been preparing for all this by 1. Not eating enough, and 2. Developing a huge crush. On the positive side, I am losing what winter weight I had gained, and I wrote an essay I had been meaning to write for some months (as I have been exchanging essays and Torah ideas with the feller I’ve got the crush on).

On the negative side, we have inability to stop obsessing about any and all things, the magnification of feeling and the diminishment of logic that come of eating too little, and a feeling like I’m about to be swamped and drained simultaneously. Which I have felt before, here in the lovely state of New Hampshire where I grew up.

The fact that I grew up here allows simple things like a hill of moss in a forest, a spring breeze, or the expression on another New Hampshirite’s face to bring on waves of feeling and memory that I haven’t noticed in years. Some rediscovered memories, like playing in the soft sunlight in a white pine wood, are welcome. But then there are the others.

I didn’t really enjoy revisiting the feeling of being alone amidst vast, potentially life-threatening needs. This goes back to my mother’s illness and my father’s depression when I was a teenager, and there is nothing like a long look at the spare, frozen fields and marshes of New Hampshire to bring back that alone-in-the-world, no-one-understands-or-cares sensation. (Out of all my old baggage, I realized today, this feeling is probably contributing the most to my crush, as the feller in question is doing things like keeping in touch on Facebook almost every day, praying for my Mom, writing back and forth about things that matter to me, sending me songs he thinks I might like, praising my ideas – all those things that contradict loneliness and feeling invisible. My only concern here is that he is not at all eager to get together in person, which makes me think that he is not interested in a real-world friendship.)

Then there are memories of my parents’ divorce, shortly preceding the illness and depression era. Oh yeah, that felt like the people I cared about most in the world tearing each other apart. I am so glad that I have been able to get more in touch with that memory! What joy! (I had another fun experience that year, which was an enthusiastic correspondence with a young man in another state who, after six months of writing letters that said things like, “I miss you so much! Can’t wait to see you,” got himself a girlfriend and quit writing to me. Unless I quit writing to him first. It was more or less immediate. I would like it to go on record that I did not know until recently that he and my current crush share a first initial and a last name. How weird is that? You can see how the less rational side of my mind comes to be freaking out over the potential for being disappointed here.)

Right now I’ve got a rickety bridge of stoicism over a raging emotional river. I would rather not have to swim. But I know I will.

4 comments:

  1. Gah. I had no idea you were going through this. I wish I could come bring you a big pot of soup and homemade bread and stand over you while you ate it.....
    I know Hospice (at least in Ky....) offers some support for caregivers too, like people to talk to. Might be worth looking into if you haven't already.
    I don't know how much reading you are doing, but there is a wonderful book by Madeleine L'Engle called The Summer of the Great-Grandmother, about the last summer her mother lived with them while she was dying. It was really good--it might be helpful. She is a wonderful author.
    Spring is on the way, even up there in the frozen (and soon to be muddy!) north. Get outside as much as you can--somehow I doubt you need someone to tell you that!
    You can do this. Do what you need to in order to take care of yourself--otherwise you won't be able to take care of your mom. God bless.

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    1. Thanks, Erika. Yes, Hospice has been great. I hadn't heard of that Madeline L'Engle book, but I will find it. I loved the Wrinkle in Time series way back when. You are spot-on about getting outside. I am supposed to have someone coming over Friday so I can do a short hike.

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  2. Wow - thank you for taking the time to write this blog and help us keep up with you - the whole process of arranging getting up there + sickness + holy-crap-its-just-gonna-be-me-and-mom + just-who-is-this-internet-dude-anyway sounds immensely time consuming and stressful! I was just thinking we should get together for Tea... ah, well! It'll have to be when you come back!

    So what *is* the plan? My Mom is doing what you're doing right now... so I feel compelled to ask you prying questions meant to help, like does NH Hospice have a hospice-at-home option where they send care staff to the house regularly, which allows a) your mom to get med care, and b) you to get out? Maine also has a subsidization for hiring nursing staff to come to the house - they do nurse-like things, plus clean and, essentially, mommy-sit. Does NH have something similar? What I'm nosily getting at, is, do you have the freedom to take care of yourself and get time off? Are there people to watch her while you do that or other important things, like get groceries? It sounds like you're getting at least a little! I'm just concerned about ya :)

    It's storming beautifully right now! Gonna go crawl off to sleep soon... never thought I'd be signing up to work a 6 day work week, but it beats melting my brain in front of a computer!

    {{{HUGS}}}

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    1. Thanks for taking the time to write back :) Hospice sends a nurse out twice a week, but three times this coming week to make sure the transition home goes okay. The physical therapist came the day after Mom got home to tutor us in using all the fancy mobility equipment. A social worker visits every other week. And home health aides can come now and again, though Mom has threatened to eat them if they try to take any bodily care of her.

      NH does not have subsidies for mommy-care. I have been very fortunate so far to have had every day one friend or another come to visit so I can get out, either out of a desire to visit my Mom, or to help me, or both. I do not feel as stuck as I feared so far. Though I am starting to do some math on who may want to visit Mom and how often they are likely to be willing to come.

      Good luck with your work. I'm glad it's taking off so strongly!

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